Appropriateness in Access to Automated Red Blood Cell Exchange. Discussion forum for patients and clinicians to help improve access to care.
The Sickle Cell Society and the Haemoglobinopathy Coordination Centres (HCC’s) have recently distributed a survey... Read More
Sickle cell nursing workforce project: Overview and call for evidence
Introduction and background: One of the clear findings of the sickle cell care inquiry conducted... Read More
Announcing our 2023 Children’s Holiday
Every year for as long as we can remember, we’ve run a Children’s Holiday for... Read More
This Valentine’s Did You Find Your Type?
By Iyamide Thomas, NHS Engagement Lead (Screening), Sickle Cell Society UK We celebrated Valentine’s Day... Read More
New Trustee: Claudette Allerdyce
A warm welcome to our new Trustee Claudette Allerdyce. Claudette is a pharmacist, with a... Read More
Paid Vacancy: Volunteer Co-ordinator
Volunteer & Community Lead – Job Description Job Title: Volunteer Co-ordinator Hours: 21 hours per... Read More
Paid Vacancy: Fundraising & Database Officer
Job Title: Fundraising and Database Officer Hours: 35 hours per week Monday to Friday Salary:... Read More
Paid Vacancy: Communications Manager
The Sickle Cell Society is looking for a Communications Manager to lead and develop the... Read More
Trustee Treasurer Vacancy
Could you be our next Board Treasurer/Trustee for the Sickle Cell Society? SCS are seeking... Read More
SCS response to European Medicines Agency (EMA) and Novartis updates on Crizlanlizumab
As many of you will know Crizanlizumab (Adakveo) was recommended as a new disease modifying... Read More
Keep Warm in the Cold Weather
Cold weather months are always a difficult time for people living with Sickle Cell. Being... Read More
Trustee Treasurer Vacancy
Could you be our next Board Treasurer/Trustee for the Sickle Cell Society? SCS are seeking... Read More
Trustee Vacancy
Could you be our new Trustee? We are recruiting for a new Board Trustee. If... Read More
Aliyah Gladying – Real Lives Blog
In my early twenties I was registered as disabled. This was during my constant hospital... Read More
One Year on from ‘No One’s Listening’ – the Sickle Cell & Thalassemia APPG report into Sickle Cell healthcare in the UK
On 15th November 2021 the Sickle Cell and Thalassemia All Party Parliamentary Group released a... Read More
John James OBE awarded Percy Lane Oliver Memorial Award 2022
We are thrilled to announce that our CEO John James OBE has been awarded the... Read More
An Interview with Anusjka Regis
Recently we spoke to Anusjka Regis – one of the first people with sickle cell... Read More
DEFRA Podcast
Our NHS Engagement Lead, Iyamide Thomas recently took part in a comprehensive podcast for DEFRA,... Read More
PERICLES (Prenatal Therapy for Sickle Cell Disease)
The Sickle Cell Society is working with King’s College on a project looking at people’s... Read More
Volunteer Vacancy: Helpline & Information Volunteers
Role Title: Helpline & Information Volunteers Responsible to: Michelle Mcfarlane & Keyah Miller... Read More
A Statement re Blood Shortages in England
Wednesday 12 October 2022 Dear Sickle Cell Society Members and the wider Sickle Cell Community... Read More
Blood Health Campaign
We supported the Blood Health campaign that launched on Launch Date within the Guardian and... Read More
Events | Mentoring Blog | News
Mentor Programme Relaunch
Do you know or live with anyone between the ages of 10-24 who have Sickle... Read More
Paid Vacancy: Fundraising Officer
Job Title: Fundraising Officer Hours: 21 hours per week Wednesday to Friday Salary: £16,800 pro... Read More
Paid Vacancy: Volunteer Co-ordinator
Volunteer & Community Lead – Job Description Job Title: Volunteer Co-ordinator Hours: 21 hours per... Read More
News | Photos | Uncategorised
Her Majesty Queen Elizabeth II
All at the Sickle Cell Society are saddened to learn of the passing of Her... Read More
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’ 2022
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’ Are you a young person (between... Read More
Paid Vacancy: Mentor
Mentor – East London Children & Young Person’s Mentoring Scheme The Sickle Cell Society is... Read More
Paid Vacancy: Communications Manager
The Sickle Cell Society is looking for a Communications Manager to lead and develop the... Read More
UK Heatwave Guidance
HOT WEATHER AND SICKLE CELL: The weather temperatures expected for today and Tuesday of this... Read More
Sickle Cell & Thalassemia APPG holds Annual General Meeting in Parliament
Sickle Cell & Thalassemia APPG holds Annual General Meeting in Parliament on Wednesday 22nd July 2022.... Read More
Sickle Cell and Fatigue (FiSCD Study) – Get Involved
The FiSCD Study: Understanding Fatigue in children and young people with Sickle Cell Disease The... Read More
Virtual Children’s Holiday 2022
This year we’re excited to be running our popular online “Virtual” Holiday again for kids... Read More
World Sickle Cell Day 2022
Sunday 19th June is World Sickle Cell Day, a United Nation’s recognised day to raise... Read More
Dr Kwaku ‘KOF’ Ohene- Frempong – our condolences
We are saddened to learn of the loss of Dr Kwaku ‘KOF’ Ohene- Frempong. We... Read More
New research reveals healthcare professionals are critical of health inequities in early diagnosis and treatment of sickle cell disorder
New research from Creation Healthcare reveals healthcare professionals are critical of health inequities and lack... Read More
New Chair of Trustees Announced
The Sickle Cell Society is excited to announce a new Chair of Trustees, Michele Salter.... Read More
Paid Vacancy: Lead Mentor
Lead Mentor – East London Children & Young Person’s Mentoring Scheme The Sickle Cell Society... Read More
Paid Vacancy: Helpline and Information Officer
The Sickle Cell Society are looking for two new Helpline and Information Officers to work... Read More
Establishing a Cure – Logo Design Competition
Establishing a Cure – Logo Design Competition We are excited to announce an open competition... Read More
Mrs Herma Falconer 1933-2022
We are sad to announce that Mrs Herma Falconer, who was part of the Sickle... Read More
More Black African people can now give blood following major change to blood donation rules
The Sickle Cell Society has teamed up with NHSBT and three other charities to promote... Read More
Events | Fundraising | News
Run a Half Marathon for Sickle Cell
Are you passionate about running? Have you ever participated in a marathon or half-marathon? Do... Read More
Sickle Cell Society calls for substantial improvements following CQC report into North Middlesex University Hospital Trust
Sickle Cell Society calls for substantial improvements following CQC report into North Middlesex University Hospital... Read More
Crizanlizumab to be available from 1st February
New sickle cell treatment to become available from the 1st February 2022. Back in October... Read More
Sickle Cell and Fatigue (FiSCD Study)
The FiSCD Study: Understanding Fatigue in children and young people with Sickle Cell Disease The... Read More
Coronavirus (COVID-19) & Sickle Cell Disorder
Coronavirus (COVID-19) & Sickle Cell Disorder This page provides the latest information and guidance specifically... Read More
Mental Health at Christmas: Some Tips for Coping
Mental Health at Christmas A guest article by Rehab 4 Addiction Why people suffer from... Read More
Office Re-Opening
On Monday 29th November, we re-opened our office after the phase-one of our refurbishment. We... Read More
Statement on Dr Mischa Brozovic
Statement on Dr Mischa Brozovic The Sickle Cell Society were deeply saddened to hear of... Read More
Hallelujah Christmas Time (Christmas Single)
The B Positive Choir have released a fantastically festive Christmas single ‘Hallelujah Christmas Time’. B... Read More
Westminster Hall Debate
Treatment of Sickle Cell We were delighted that Rt Hon Pat McFadden MP (Chair of... Read More
Christmas Shopping
Christmas Shopping This Christmas, why not raise FREE donations to support our work when you... Read More
No One’s Listening – A Report
MPs call for urgent changes to sickle cell care after inquiry finds “serious failings” Report... Read More
Mid Term Strategy Update
In 2020 we issued a strategy describing how we would develop the Sickle Cell Society... Read More
Autumn Newsletter 2021
Autumn Newsletter 2021 In this Autumn edition of our newsletter, get an update on the... Read More
Statement on the Tragic Death of Sir David Amess
The APPG for Sickle Cell and Thalassaemia send our deepest condolences to the family of... Read More
First Sickle Cell Treatment in Over 20 Years
For the first time in over 20 years, a new treatment for sickle cell has... Read More
In Memory of Olivier Mmounda
The Sickle Cell Society were deeply saddened to hear of the recent passing away of... Read More
Join the Ascelus Service User Advisory Group
Ascelus Service User Advisory Group We are excited to be involved in the Ascelus research... Read More
Save Free Prescriptions (An Open Letter to the Secretary of State)
Sickle Cell Society signs a joint open letter to save free prescriptions for 60-65 year... Read More
Global Cure Sickle Cell Disease Virtual Conference
You are invited to attend a free Global Cure Sickle Cell Disease Virtual Conference on October... Read More
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’
The Sickle Cell Society – ‘Emmanuel Amuta Poetry Award’ Are you a young person (between... Read More
Sickle Cell Society AGM 2021(Virtual)
About this event You are invited to the 42nd Annual General Meeting (AGM) of the... Read More
Future treatments for Sickle Cell Disease
Future Treatments for Sickle Cell On Thursday 2nd September 2021, the Sickle Cell Society and... Read More
Gideon’s Treasure London Fashion Week Charity Gala
Gideon’s Treasure London Fashion Week Charity Gala The Sickle Cell Society will be partnering with Gideon’s... Read More
How to Live with Sickle Cell: Sickle Cell and I
HOW TO LIVE WITH SICKE CELL: Sickle Cell and I The above is the title... Read More
Prescription Charge Petition
Add Sickle Cell to the Prescription Charge Exemption List Anusjka Regis-Etumnu has set up a... Read More
South London: We’re Listening
Affected by sickle cell in South London? We’re listening. In April 2021, Sickle Cell Society... Read More
Events | Fundraising | News
Run the London Marathon for Sickle Cell
Are you passionate about running? Have you ever participated in a marathon or half-marathon? Do... Read More
Monthly Parent Talk
Monthly Parent Talk Are you a parent with sickle cell or has a child with... Read More
Virtual Children’s Holiday
Every year for as long as we can remember we’ve run a multi-activity Children’s Holiday... Read More
Inquiry into Sickle Cell Care: Evidence Sessions
Inquiry into Sickle Cell Care: Evidence Sessions In May we launched a call for evidence... Read More
Miffy Sickle Cell Partnership
Miffy to partner with the Sickle Cell Society Miffy – the classic bunny character created... Read More
Exhibition: History and Memory of Sickle Cell Anaemia in Britain 1950 – 2020
Exhibition Launched on the History of Sickle Cell Anaemia in the UK at Black Cultural... Read More
Inquiry into Sickle Cell Care: A Call for Evidence
The deadline for the call for evidence has now passed. To find out more about... Read More
Updated Statement on the Preventable Death of Evan Nathan Smith
Updated Statement on the preventable death of Evan Nathan Smith Last month, we published a... Read More
Bola’s Story
Life-saving sickle cell treatment is highlighted in a new video sharing patient story. Life-saving sickle... Read More
Family Comedy Show
Do you or anyone you live with have sickle cell? Join us for a Family... Read More