Since its launch, is has held over 50 activities for children and young people as well as activities for parent/careers. The activities have included a range of fun days out as well as informative workshops on key topics such as managing anxiety, transition into adult services, pain management and more.

Those who have participated in these activities and workshops have fed back the positive impact these days out have provided such as peer 2 peer support, reducing isolation, increasing confidence and feeling more positive about living with sickle cell.

Throughout the project we have also recruited 40+ volunteers, many living with sickle cell or carrying the sickle cell trait. We are so grateful to the volunteers who have given their time to help support the project and hope they have enjoyed their time and the training they have received on first aid and caring for people living with sickle cell.

On top of this we have worked closely with support groups to build capabilities across Lambeth, Lewisham and Southwark as well as other areas such as Croydon, Wandsworth and Merton.

It has been a pleasure leading the project for the last 3 years and seeing first-hand the impact the project has had for individuals living with SCD both younger and older and parents & carers. The project has demonstrated the need for such services and while it is sad to see the project come to an end in August 2019, it has been fantastic seeing the positive impact it has made.

Thank you to all those who have participated including the volunteers for giving up their time.  Valerie and I have enjoyed working with you all.

Donna Prendergast

South London Community Manager

If you have any queries, please do not hesitate to contact the Sickle Cell Society on info@sicklecellsociety.org

Or if you are looking for support, information or advice then get in touch with our Helpline on helpline@sicklecellsociety.org

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Learn how to juggle with balls/clubs and devil sticks.  Work silk scarves, diablo, spinning plates.  Find your centre on balance boards.  And more.

Finally, you have the option to showcase the skills you learnt (or just watch others) at the end of day performance.

Refreshments and a light snack is also provided.

Book your free place here: https://circusskillsscs.eventbrite.com

For further information please email:  valerie.oldfield@sicklecellsociety.org or call:  0203 879 9535

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Come and find out all about volunteering with the Sickle Cell Society at our special recruitment & training event.

In a relaxed atmosphere you will find out all about volunteering with us plus meet active volunteers, receive training and eat a lovely two course, hot meal for lunch plus light music whilst socialising. This is a half day programmed event which requires your commitment to the whole programme. From 11am to 4pm.

Volunteers play an important role in providing support to the Sickle Cell Society.

Anyone over 18 who has some spare time are welcome. We are looking for members of the public from a wide range of backgrounds for a variety of rewarding opportunities.

If you have volunteered for us in the past and are now free to do so again, we welcome you to attend and consider volunteering with us again.

Sign up here: https://volunteerrecruitmentevent.eventbrite.com

For further information please contact, 0203 879 9535 or email: valerie.oldfield@sicklecellsociety.org

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On the day we will have cooking demos, juicing demostrations & tasting, as well as recipes to take home!

A talk about Sickle Cell Disorder and Healthy Eating by a qualified Dietician.

A talk from one of our Trustees about plant based foods and Sickle Cell Disorder.

A one hour cooking class for young people and children where they will make and take home a savoury and sweet food item, all made with fresh ingredients, which they can eat afterwards or take home!

Book your free place here: https://sicklecellandhealthyeating.eventbrite.com

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At Parent/Carer requests we will be hosting a Parent/Carer meet to discuss topics such as your children transitioning to adult services, starting secondary school, college, university, leaving home, drugs and alcohol, and anything else you’d like to talk about and share knowledge and learn from other parents/carers to reduce anxieties and concerns.

For the Young People – Let’s Mix It Up! Teenagers

We will be holding a separate event on the same day that will include:

A fun-filling, social interactive yet informative, inspiring and empowering gathering.

Impressed or not – dare you to come and see for yourself!

Food and Drinks included.

Canada Water Culture Space, Canada Water Library, 21 Surrey Quays Road, London, SE16 7AR

Book your free place here

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You will take home your beautifully free piece of jewellery plus learn skills in jewellery making.

This course is for women of all ages. The course has two sessions – Saturdays 30th March and 27th April 2019. A commitment to attend both sessions is required.

Would you like to attend but will have to bring your child or children with you? This could be accommodated by calling Valerie on 0203 879 9535 or emailing valerie.oldfield@sicklecellsociety.org

LIMITED PLACES ARE AVAILABLE SO REGISTER NOW!!!

(If you are unable to attend please cancel your registration so that someone else can have your place.)

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Sample Action Plan

Sample M & E framework

Thinking About Collaborating – Slide Pack

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Join our panel to discuss advocacy for teenagers. We will be having a panel of speakers that will include:

• A Sickle Cell Society Mentor for Young People
• A Transition Nurse
• A Transition Psychologist

The purpose of this workshop is to discuss how young people can be empowered and be a collective voice. Following from our first teenage workshop this 2nd event will discuss ways young people can manage their condition better at secondary school.(You don’t need to have been to the first event to come to this one).

Parent/Carer Yoga and Discussion

While this talk is happening we will be providing parents with a yoga and wellbeing session.

10th November 12:30pm – 3pm

Venue 28, 28 Beckenham Road, Beckenham, BR3 4LS

Book your free place here

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Due to popular demand, this is our second FREE pain management workshop.

The main focus of this workshop is on complementary physiology which will be delivered by Dr Kofi Anie MBE, PhD, AFBPsS a Consultant Psychologist at Haematology and Sickle Cell Centre Central Middlesex Hospital.

We will also be having specialist talking about pain and medication therefore giving a complete rounded resource for managing sickle cell pain.

This FREE workshop will give you an alternative perspective to pain management and the opportunity to share what works for you.

Light refreshments will be provided.

Comments from our first workshop:

“This was the best informative session I’ve ever attended about managing and understanding SCD pain.”

“Very, very informative. I will leave with a better understanding of how the analgesia I am currently using can/will affect me long term.”

“This session on pain management was very helpful i.e. interesting and knowledgeable. Very good speakers.”

For further information contact valerie.oldfield@sicklecellsociety.org

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